pumps carolyn   Posted: Feb-09-07, 06:45 PM (EST) Post a Reply Reply With Quote   Joined: Feb-9-07 Posts: 3 Wet Behind The Ears hello. i have had d. 1 for about two years. i am trying to get onto insulin pump therapy. is there anyone in the u.k. who is using a pump? Report Bad Post | Print-Friendly | Reply | Reply With Quote | Top | Tree

1. RE: pumps mdf100   Posted: Feb-12-07, 03:07 PM (EST) In response to: message #0 Post a Reply Reply With Quote Joined: Apr-14-06 Posts: 47 Warmed Up You'll be lucky! The NHS give them out like Willy Wonka's golden tickets... I got told that having exhausted all other options the pump is the only way I am going to get good control, but my PCT is in debt so no chance. They are not cheap to buy privately (running costs are staggering!). Report Bad Post | Print-Friendly | Reply | Reply With Quote | Top | Tree

2. RE: pumps carolyn   Posted: Mar-18-07, 06:43 PM (EST) In response to: message #1 Post a Reply Reply With Quote   Joined: Feb-9-07 Posts: 3 Wet Behind The Ears I'M SORRY THAT YOU HAVE HAD NO LUCK, GETTING ONTO PUMP THERAPY. MY ENDO IS PUTTING A LOT OF PATIENTS ONTO PUMP THERAPY AS SHE BELIEVES IT IS THE BEST WAY TO TREAT. Report Bad Post | Print-Friendly | Reply | Reply With Quote | Top | Tree

3. RE: pumps weeniebops60   Posted: Mar-20-07, 04:46 PM (EST) In response to: message #0 Post a Reply Reply With Quote   Joined: Mar-20-07 Posts: 2 Wet Behind The Ears my friend has been offered a pump and doesnt know where she should start using one or not. Would you recommend this type of medication ----------- Wildie Report Bad Post | Print-Friendly | Reply | Reply With Quote | Top | Tree

4. RE: pumps mdf100   Posted: Mar-21-07, 03:29 PM (EST) In response to: message #3 Post a Reply Reply With Quote Joined: Apr-14-06 Posts: 47 Warmed Up Hey - cop out answer I know, but it depends on the person. I'd really love to go on a pump but I can't right now I have heard it can be invasive at first, but once you get used it it they can be a dream. Like most things in life, what you put in is what you get out I suppose... However they simply do not work for some folks. Your friend could always try it and if they don't like it swap back. Report Bad Post | Print-Friendly | Reply | Reply With Quote | Top | Tree

5. RE: pumps amycarlson   Posted: Mar-21-08, 10:30 AM (EST) In response to: message #4 Post a Reply Reply With Quote   Joined: Jan-14-08 Posts: 6 Wet Behind The Ears We just put my kiddo on a pump a bit ago, so I don't have the largest amount of experience yet...but I can tell you that she's gone from being extremely volatile in her BG readings to within range ALMOST all of the time in the span of the last week and a half. Absolutely amazing! She doesn't seem to be having any issues w/ the infusion set or anything, either. She says it's easy to sleep with, and it bothers her a lot less than multiple injections over the course of the day. So far, so good. Good luck with your decision! There are advantages to both ways, right?! Report Bad Post | Print-Friendly | Reply | Reply With Quote | Top | Tree

6. RE: pumps micksmixxx   Posted: Mar-21-08, 03:27 PM (EST) In response to: message #0 Post a Reply Reply With Quote   Joined: Aug-22-07 Posts: 39 Warmed Up My apologies to you Carolyn. I really can't explain how I missed your message. I've been using an insulin pump (Continuous Subcutaneous Insulin Infusion (CSII)) system since November 1998, and to be frank with you I'd be extremely reluctant to go back to multiple daily injections. In fact, shortly after Lantus insulin was introduced here, in the UK, we (my consultant endocrinologist and I) did try as Lantus promised to be something special. Alas, it turned out to not be as good as we were hoping ... or, for me, it didn't turn out to be as good as expected. <grin> I've added some urls here for you to take a look at, some, of which, I think you'll find useful. Having said that, you may find that it's an uphill struggle to actually get your doctor/diabetologist/endocrinologist to back you for pump therapy. Basically, what's happening is that cost is being taken into account far more than I believe it should be. 'They' (Primary Care Trusts/NHS) seem to be viewing things in the short term. The cost of a pump, and the ongoing replacement set changes (insulin reservoirs, cannualas, etc.) is quite expensive, but, if you weight this up against the cost of hospital admissions (for those whose diabetes gets seriously out of control), I firmly believe that they're saving money. Luckily for me, my endocrinologist agreed with that viewpoint. As a 30-second summary of NICE (National Institute of Health and Clinical Excellence) guidelines, you will only be considered for pump therapy if multiple daily injections is not working well for you. i.e., if your HbA1c levels are consistently over 7.5% About 5 years ago, I spoke to my then local MP with regards to getting clarification from the House of Commons that any type 1 diabetic that wished to utilise a pump system would be granted this wish. He promised me that he would raise the issue in the House, but he never got back to me to let me know what had happened. Anyway, take a look at these sites, and if you feel that I may be able to help you further, don't hesitate to contact me, either via this forum or by sending me an email directly. http://www.insulin-pumpers.org/ - You can choose here to view the Canadian or the UK site if you wish http://www.insulin-pumpers.org.uk/mypump/ - This give information on how people have found using a pump http://www.medicinenet.com/insulin_pump_... http://www.insulin-pump.info/ http://www.insulin-pumpers.org/faq/novop... - A .pdf document on whether an insulin pump is right for you http://www.diabetes.nhs.uk/downloads/NIC... - A summary of relevant guidelines http://www.dh.gov.uk/en/Publicationsands... http://www.dh.gov.uk/en/Healthcare/Natio... Report Bad Post | Print-Friendly | Reply | Reply With Quote | Top | Tree

7. RE: pumps mdf100   Posted: Mar-21-08, 06:37 PM (EST) In response to: message #6 Post a Reply Reply With Quote Joined: Apr-14-06 Posts: 47 Warmed Up Guys, The NICE guidelines are under review and will be slackened within a month or two. In short it will be easier to get a pump if you want / need one. Other news - I have actually been accepted for a pump! I'm over the moon. I start on April 7th and I can't wait. I have had HBA1c's over 10+ for 7 years now (been down as low as 8 once or twice). Mark Report Bad Post | Print-Friendly | Reply | Reply With Quote | Top | Tree

8. RE: pumps sherrilynn32   Posted: May-09-08, 11:58 PM (EST) In response to: message #0 Post a Reply Reply With Quote   Joined: May-9-08 Posts: 1 Wet Behind The Ears I am not in the UK, but I have had a pump for 5 years. It breaks a lot but when it is working, it is totally wonderful. Such freedom, and my A1C is 7.9 when I am not trying, it is much better when counting carbs. it is wonderful. the billing people are jerks though. medtronic is what I have been using. It is very expensive. But I wouldn't want to ever go back to the old style shots..... NEVER. Report Bad Post | Print-Friendly | Reply | Reply With Quote | Top | Tree

Lobby/All Forums | All Topics in this Forum | Previous Topic | Next Topic